News · · 15 min read

Understanding and Managing Anxiety in Children with Autism: Strategies for Parent Advocates

Explore anxiety in children with autism and ADHD. Discover triggers, symptoms, and effective strategies for support.

Understanding and Managing Anxiety in Children with Autism: Strategies for Parent Advocates

Introduction

Anxiety can have a significant impact on children, particularly those with Autism Spectrum Disorder (ASD) and Attention-Deficit/Hyperactivity Disorder (ADHD). Understanding the unique challenges that these children face when it comes to anxiety is crucial for providing effective support. Anxiety in children with ASD and ADHD can manifest in various ways, including physical symptoms and changes in behavior. It can also have a profound impact on the child's quality of life and the well-being of their family. This article explores the triggers, symptoms, and impact of anxiety in children with ASD and ADHD, as well as strategies for managing and supporting these children.

In recent years, there has been a growing recognition of the link between autism, ADHD, and anxiety. Nearly half of children with ASD meet the criteria for at least one anxiety disorder, and anxiety often exceeds the impact of ASD itself. Identifying signs of anxiety in children with ASD and ADHD can be challenging, as they may present differently than in other children. Sleep issues can also exacerbate anxiety symptoms in these children. However, with proactive parenting strategies and access to appropriate support services, it is possible to help children with ASD and ADHD manage their anxiety and improve their overall well-being.

1. Understanding Anxiety: A Comprehensive Overview

Anxiety is not a mere emotional response, but a complex multidimensional experience that can significantly affect children, especially those diagnosed with autism and ADHD. This experience often extends beyond the realm of emotions, leading to physical manifestations such as restlessness, tiredness, difficulty in focusing, and sleep disruptions.

Children with Autism Spectrum Disorder (ASD) are particularly susceptible to anxiety disorders, with nearly half of them meeting the criteria for at least one such disorder. However, the presentation of anxiety in children with ASD is often unique, with autism-specific triggers and symptoms. Common triggers include changes to routine, social and communication situations, specific fears and phobias, sensory oversensitivity, and being prevented from preferred repetitive behaviors and interests.

In terms of symptoms, children with ASD may display an increase in challenging behavior, avoidance/withdrawal/escape tendencies, heightened levels of arousal, physical sensations associated with anxiety, cognitive distortions, and errors in thinking. It's crucial to note that children with ASD may have difficulty expressing their anxiety verbally, particularly during times of severe distress.

The impact of anxiety on children with ASD is profound, often exceeding the impact of ASD itself.

Join ASD Media's supportive and inclusive community where individuals can share experiences, learn from each other, and receive support on their journey of managing anxiety in children with ASD.

It causes personal distress for the child, parents, and siblings, an increase in challenging behavior and stereotyped behaviors, restriction of activities/opportunities, and a negative impact on the quality of life for the child and family.

Understanding these specific triggers and presentations of anxiety in children with ASD can help improve programs and services for this population.

Subscribe to ASD Media's newsletter to stay updated on the latest news and gain unlimited digital access to resources that can help improve programs and services for children with ASD.

Cognitive-behavioral therapy (CBT) is an effective intervention for anxiety in children with ASD, but clinicians should consider whether other approaches, such as behavioral strategies or environmental modifications, may be more suitable for some individuals.

These insights are supported by an exploratory study published in the journal Autism, which reported on a series of focus groups with parents of children and adolescents with ASD and anxiety. The study identified key themes related to triggers, symptoms, and the impact of anxiety in children with ASD, providing valuable insights into managing anxiety in this population.

Moreover, resources such as the book "A Best Practice Guide to Assessment and Intervention for Autism Spectrum Disorder (ASD)" by Lee A. Wilkinson, a licensed and nationally certified school psychologist and certified cognitive-behavioral therapist, offer further guidance on understanding and managing anxiety in children with ASD.

In conclusion, understanding anxiety in children with ASD and ADHD is a multifaceted challenge, requiring a comprehensive understanding of its triggers, symptoms, and impacts. With the right resources and approaches, we can better support these children and improve their quality of life.

2. The Link between Autism, ADHD, and Anxiety

Autism Spectrum Disorder (ASD) is a developmental disability that has profound effects on an individual's communication skills, social interactions, and behaviors. It is typically identified early in a child's life and persists throughout their lifetime. The condition is characterized by a spectrum of symptoms, which can range from mild to severe. For example, individuals with ASD might exhibit inconsistent or limited eye contact, have difficulty relating to others, engage in repetitive behaviors or phrases, and demonstrate sensitivity to sensory inputs.

It is estimated by the Centers for Disease Control and Prevention (CDC) that 1 in 68 children are diagnosed with ASD, highlighting its prevalence in our society. The fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) amalgamates several previously separate disorders, including autistic disorder, pervasive developmental disorder not otherwise specified (PDD-NOS), and Asperger syndrome, under the umbrella of ASD.

Anxiety is a common co-occurring condition with ASD, complicating the landscape of symptoms and behaviors.

The Link between Autism, ADHD, and Anxiety

Approximately 40% of people with ASD grapple with elevated levels of anxiety or one or more anxiety disorders. It can sometimes be a challenge to differentiate anxiety symptoms from the typical behaviors associated with autism, as they can present similarly. For instance, tantrums, avoidance of new tasks, and hitting might be manifestations of underlying anxiety.

Having a chronic illness or disease, such as ASD, increases the likelihood of developing a mental illness. This connection underscores the importance of early recognition and intervention for anxiety disorders in children with ASD. With the aid of research and advancements in diagnostic tools, we are now better equipped to identify and treat anxiety in children and teens with ASD. Anxiety management resources, including specialized treatments, are available to support individuals with ASD and their families.

It's important to note that if symptoms of ASD are observed, one should reach out to a primary health doctor for evaluation. The interplay between autism, ADHD, and anxiety is complex, and understanding this link is vital in devising effective strategies to manage anxiety in children with autism and ADHD.

3. Identifying Signs of Anxiety in Children with Autism and ADHD

Children with Autism and ADHD often experience anxiety, but it may present differently than in other children, making it difficult to identify. For instance, these children may exhibit increased irritability, mood swings, or changes in behavior. They may also struggle with adjustments to their routine or transitions, and sleep disturbances are common.

Children on the autism spectrum often exhibit developmental differences in social and language skills from infancy and toddlerhood. Delays in joint attention skills, such as looking back and forth between an object or event and another person, are a common occurrence in children with autism spectrum disorder (ASD). There may be delays or differences in their use of gestures, like pointing, compared to typically developing children. Language delays and differences, including the use of labels and echoing or repeating what they hear, are often observed in children with ASD.

Moreover, some children with ASD might experience a regression in developmental milestones, like language skills, between the ages of 15 and 24 months. As recommended by the American Academy of Pediatrics (AAP), all children should be screened for ASD at their 18 and 24-month well-child checkups. Early intervention is crucial for improving outcomes for children with ASD, and parents should discuss any concerns about their child's development with their pediatrician.

Anxiety, which includes emotions like worry, fear, or stress about actual or perceived events, is common in children and adolescents with ASD. They may exhibit anxiety through behavioral and physical symptoms, even if they have difficulty expressing their emotions verbally. Triggers for anxiety in individuals with ASD can include sudden changes in routine, unfamiliar social situations, or sensory stimulation.

Assessing anxiety in individuals with ASD may require input from both the child and their caregiver to get a complete picture of the symptoms and potential triggers. Treatments for anxiety in individuals with ASD can include medications such as antidepressants and antipsychotics, which should be started at low doses and monitored for side effects. Non-medical treatments can include individual, family, and social group therapies, as well as cognitive-behavioral strategies.

Caring for an anxious child with ASD can be challenging and exhausting, and the caregiver may need support and encouragement. The impact of caring for a child with ASD can be stressful on the family unit, and family, marriage, and sibling therapy may be necessary to provide support. It is crucial for caregivers to prioritize their own mental health, as the mental health of those around individuals with ASD can impact their well-being. Consultation with a healthcare provider is recommended for medical and psychiatric advice.

4. The Impact of Sleep Issues on Anxiety in Children with Autism and ADHD

Children with autism and ADHD often grapple with sleep challenges, which may intensify their anxiety symptoms.

The Impact of Sleep Issues on Anxiety in Children with Autism and ADHD

A lack of restful sleep can fuel irritability, hinder concentration, and magnify sensitivity to sensory stimuli, all of which can feed into anxiety. Therefore, addressing sleep disturbances is a critical part of managing anxiety in these children.

A significant number of children on the autism spectrum, between 44 and 83%, grapple with sleep difficulties, which in turn affects their daily functioning. Sleep problems can start as early as infancy and persist into later years, with nearly 80% of preschool-aged children with autism experiencing sleep-related issues. These sleep disturbances can manifest as trouble falling asleep, restlessness, poor sleep quality, waking early, or frequent awakenings during the night. These issues can stem from factors like imbalances in the circadian rhythm and hyperactivity in the brain.

The negative impact of poor sleep can be profound, leading to anxiety, sensory issues, difficulty staying focused, restlessness, aggression, hyperactivity, and daytime fatigue. It can also amplify behavioral problems in children with autism. Environmental and genetic factors, along with medications such as those prescribed for ADHD, can interfere with sleep. Other co-occurring conditions like ADHD and anxiety, as well as gut dysbiosis, can further impact sleep.

There are several strategies that can be employed to improve sleep in children with autism and ADHD. Fine-tuning the child's sleep environment, such as adjusting temperature, light, sound, texture, and smells, can promote better sleep. Establishing a consistent bedtime routine that includes non-stimulating activities and connection-focused one-on-one time can help prepare the child for sleep. Visual aids, such as a picture schedule, can help children with autism understand what to expect and anticipate the bedtime routine.

It's advisable to limit exposure to blue light from electronic devices before bed and increase exposure to natural sunlight during the day to help regulate circadian rhythms. Dietary modifications, such as reducing or eliminating caffeine and sugar, can improve sleep quality. Offering preferred snacks before bed can help prevent hunger-related sleep disturbances. Incorporating purposeful movement and play throughout the day can help children burn off energy and promote a restful night's sleep. Adding light exercise, such as stretching or yoga, to the bedtime routine can aid in falling asleep faster and sleeping deeper.

Before bed, ensuring the child uses the bathroom can prevent nighttime awakenings due to tummy discomfort. In some cases, supplements like melatonin or magnesium may promote better sleep, but their use should be carefully monitored. Additional holistic additions to the bedtime routine, such as weighted blankets, soothing music, and essential oils, may also promote relaxation and better sleep.

It's important to consult with a child's doctor to rule out medical causes for sleep disturbances before considering medication. Advocating for a thorough medical check-up and exploring non-medicinal approaches should be prioritized before resorting to medication. Numerous resources and support groups are available for families living with autism, and these can provide valuable help and guidance.

5. Proactive Parenting: Strategies for Managing Anxiety in Children with Autism and ADHD

Navigating your child's journey through anxiety can be a challenging, yet rewarding experience. You have the power to make a difference by implementing various strategies that can help your child manage their anxiety.

Creating a predictable routine is one such strategy. Just like adults, children thrive on routine. It provides them with a sense of security and helps them understand what to expect from their day. Amidst the COVID-19 pandemic, many children with Autism Spectrum Disorder (ASD) have had to adapt to new routines, including the transition to remote learning. This change in routine can be a source of anxiety, but with your guidance and support, your child can navigate this new normal.

Providing a safe and calming environment is another critical aspect. This includes both physical and emotional safety. With the shift to telehealth services for cognitive behavioral therapy (CBT) during the COVID-19 pandemic, many children with ASD are now receiving treatment in the comfort of their own homes. This can be beneficial as it offers a familiar and comfortable environment. However, it also presents challenges such as finding a quiet, distraction-free space. Your role in facilitating this transition is crucial.

Teaching coping skills like deep breathing exercises and mindfulness techniques is another effective strategy. These techniques can help your child manage their anxiety symptoms, especially during stressful times such as the current pandemic. The recent shift to remote delivery of CBT has led to modifications in treatment targets and exposure exercises to address new sources of anxiety. As a parent, you can reinforce these skills at home and help your child practice them regularly.

Encouraging open communication is also essential. This means validating your child's feelings and letting them know that it's okay to feel anxious. During the COVID-19 pandemic, many children have experienced increased fears of contracting the virus and changes in social anxiety symptoms due to reduced social interactions. By encouraging open communication, you can help your child express these fears and anxieties.

Remember, you're not alone in this journey. As a parent, you're part of a larger community navigating similar challenges. The experience of others can provide valuable insights and strategies to help manage anxiety in children with ASD. As we continue to navigate the pandemic and its impact on our children's mental health, it's important to stay flexible, adapt to new circumstances, and continue seeking out the most effective strategies to support our children.

6. Navigating Support Services for Managing Childhood Anxiety

Navigating the sea of support services for managing anxiety in children with Autism and ADHD can seem like a daunting task.

Explore ASD Media's resources and guidance to navigate support services for managing anxiety in children with Autism and ADHD.

Among the vast array of services, cognitive-behavioral therapy (CBT) stands out as a viable option. CBT aids children in understanding and managing their anxiety, equipping them with the tools to face their worries head-on.

In addition to therapy, support groups form an integral part of the support system. These groups serve as a platform where parents can share their stories, learn from the experiences of others, and draw strength from the collective wisdom of the group. The journey through these services may appear overwhelming, but there are resources like ASD Media that can provide invaluable guidance and support.

Anxiety is a normal part of a child's development. However, when anxiety becomes severe and interferes with daily activities, it's crucial not to dismiss it. Instead, it should be addressed with the help of a mental health professional who specializes in children and adolescents' evaluation and treatment.

The American Academy of Child and Adolescent Psychiatry (AACAP) and the American Psychiatric Association (APA) have developed guidelines to help parents make informed decisions about treating anxiety disorders in children and adolescents. These guidelines offer evidence-based recommendations for the assessment and treatment of anxiety disorders.

It's important to observe and take notes on your child's behavior and emotions. This information can be helpful during the evaluation process with a mental health professional. During the intake process for therapy, parents and children may be interviewed separately, medical and academic records may be reviewed, and behavior rating scales may be completed.

Referrals for finding a therapist experienced in working with children with anxiety can be obtained from various sources such as pediatricians, teachers, and guidance counselors. It's also important to check insurance coverage and therapist availability to ensure that providers experienced in cognitive behavior therapy (CBT) are available.

While psychologists (PhD or PsyD), psychiatrists (MD), and social workers (MSW) all play roles in treatment, their roles differ. Psychologists and psychiatrists can provide therapy and prescribe medication, while social workers focus on therapy and psychotherapy.

In addition to these resources, there are several online tools available for parents. These include apps and podcasts that assist with anxiety management, like the Calm app, the Worry Time app, and the Breathe app. Books and other resources also provide further information and support for individuals dealing with anxiety disorders.

Remember, you are not alone on this journey. There are numerous resources and support services available, and with the right guidance and support, you can navigate through them effectively and ensure the well-being of your child.

7. Enhancing Social Skills to Reduce Anxiety in Children with Autism and ADHD

Developing social competencies is a powerful approach to mitigating anxiety in children with autism and ADHD. Social skills training plays a pivotal role in this process, enabling children to decode social cues and enhance their interpersonal interactions. A study published in Autism Research (Volume 14, Issue 5, pages 1061-1072) sheds light on the effectiveness of such training.

In the study, a blended online and face-to-face social skills training program, known as the Program for the Education and Enrichment of Relational Skills (PEERS), was implemented. The program focused on adolescent girls with social communication difficulties, which often co-occur with conditions such as autism and ADHD. The goal was to enrich their social understanding and performance.

The study design incorporated a 3-month baseline, a 2-month intervention, and a 3-month follow-up period. This comprehensive approach allowed for a robust analysis of the program's feasibility and acceptability. Moreover, the study's inclusion of both online and face-to-face elements provided a flexible format that catered to the unique needs of the participants.

The study found that attendance rates for the program were impressively high, with no participants dropping out. This indicates that the blended format was well-received and that the program was feasible. Additionally, feedback from participants and their families reflected a positive reception of the online format.

Objective outcome measures demonstrated substantial gains in social understanding and improved social initiations from pre-intervention baseline measures. This underscores the potential of blended social skills interventions for children with social communication difficulties.

Furthermore, the study revealed the importance of adapting social skills training programs to cater to the specific needs of different demographics, such as adolescent girls with social communication difficulties.

In addition to social skills training, structured social activities also play a significant role in enhancing social skills. By participating in these activities, children can practice their social skills in a nurturing and supportive environment, further reducing their anxiety levels.

In conclusion, the development of social skills is a promising avenue for reducing anxiety in children with autism and ADHD. Through tailored social skills training programs and structured social activities, children can gain a better understanding of social cues, improve their ability to interact with others, and ultimately, alleviate their anxiety.

8. Building a Supportive Community: Sharing Experiences and Learning from Each Other

Establishing a supportive and empathetic community forms a critical part of addressing anxiety in children with Autism and ADHD. Such a community functions as a stage where parents can exchange their unique experiences, learn from each other, and gain essential insights and strategies to enhance their support for their children.

An exemplary community that serves this purpose is 'CHADD's ADHD Parents Together'. This online community, comprising over 21,698 parents of children with ADHD, allows parents to share their experiences and seek advice on a multitude of ADHD-related issues. Topics frequently discussed include medication changes, handling difficult situations with teachers, and finding the right healthcare professional. The community also addresses more specific issues such as managing sleep problems, dealing with aggressive behavior at school, and dealing with morning struggles. More than a space for sharing concerns and frustrations, this community also fosters discussions on the impact of ADHD on children's education and daily lives. Additionally, 'CHADD's ADHD Parents Together' extends resources and information on ADHD through their website, chadd.org, emphasizing the significance of support and understanding among parents.

In a similar vein, 'The Autism Forums' is a friendly online community focused on Asperger's syndrome, autism, and related conditions. The forum harbors various sub-forums, including general autism discussions, autism books, autism directory, political discussions, news and events, help and support, and more. The forum also accommodates discussions on diverse topics like hobbies, entertainment, computers, and technology. With an impressive membership of over 19,261 and more than 992,033 messages, this community is a dynamic space for engagement and learning. The forum runs on the XenForo platform and operates under its own set of terms, rules, and privacy policy.

The formation and nurturing of such communities underline the strength of collective wisdom and a shared sense of understanding. They offer a priceless platform for parents to connect, share, learn, and empower themselves in their journey of supporting their children better. It is crucial to provide parents with access to reliable and informative resources, including websites, articles, and online communities that offer guidance, tips, and support. Connecting parents with local support groups and organizations specializing in autism and ADHD can provide them with a network of people who understand their challenges and can offer advice and encouragement. Furthermore, access to professionals such as therapists, counselors, and doctors can offer expert guidance and support, enhancing the overall strength of the support network for these parents.

Conclusion

In conclusion, understanding anxiety in children with Autism Spectrum Disorder (ASD) and Attention-Deficit/Hyperactivity Disorder (ADHD) is crucial for providing effective support. These children face unique challenges when it comes to anxiety, with triggers and symptoms that can differ from those in other children. Anxiety can have a profound impact on their quality of life and the well-being of their families. However, with proactive parenting strategies and access to appropriate support services, it is possible to help these children manage their anxiety and improve their overall well-being.

The insights provided in this article highlight the importance of recognizing the link between autism, ADHD, and anxiety. Nearly half of children with ASD meet the criteria for at least one anxiety disorder, and anxiety often exceeds the impact of ASD itself. Identifying signs of anxiety in children with ASD and ADHD can be challenging, as they may present differently than in other children. Sleep issues can also exacerbate anxiety symptoms in these children. By understanding the triggers, symptoms, and impacts of anxiety in children with ASD and ADHD, we can develop strategies to manage and support them effectively.

To start supporting your child with ASD or ADHD in managing their anxiety, it is essential to seek professional guidance from therapists who specialize in working with these populations. Additionally, connecting with online communities such as 'CHADD's ADHD Parents Together' or 'The Autism Forums' can provide valuable support and resources. Remember that you are not alone on this journey, and there are resources available to help you navigate through the challenges of supporting a child with autism or ADHD. Start now by reaching out for support and exploring the available resources to improve your child's well-being.

Read next